Many of these painkillers are equal in strength to oxycontin and oxycodone, which many people with sickle cell anemia have been taking since they were children.
They are also the same drugs which are at the center of the nation’s current opioid addiction epidemic.
With only one FDA-approved treatment and no widely available cure, life is extremely challenging for people with SCD.
Pain — both chronic and acute — is common and results in tremendous suffering and difficulty continuing daily activities like work or school.
Sickle Cell News for August– To join or leave the listserv visit: ASH to Develop Clinical Guidelines to Improve Care for People with Sickle Cell Disease the American Society of Hematology (ASH) is working on several projects to conquer sickle cell disease (SCD) worldwide.
Among them, the Society has launched an effort to develop clinical practice guidelines on the management of SCD.
Adherence to clinic appointments and healthcare utilization were measured retrospectively from medical records.
Thus, federal and state governments are seeking to pressure doctors to limit their prescriptions of such drugs to patients to curb the deadly trend.
According to Judy Anderson, the executive director of the Sickle Cell Anemia Association of Hampton Roads, a growing number of people who are suffering from sickle cell anemia may be severely impacted by the government’s effort to curb opioid addiction. [Epub ahead of print] The effects of music therapy on transition outcomes in adolescents and young adults with sickle cell disease.
ASH continues to increase its educational resources through the development of webinars and in-person training opportunities and will also host a broad array of sessions about SCD at the 59th ASH Annual Meeting in Atlanta.
“There are many unique challenges that people with SCD face,” said ASH President-Elect Alexis Thompson, MD, MPH.
One panel has been called to address the use of blood transfusions to improve red blood cell count and mitigate complications of SCD, while another has been convened to improve the understanding of stem cell transplantation, currently the only cure for SCD.